- Name: Lia
- Last name: Snider
- Age: 4
- Diagnosis: Pierre Robin's syndrome
- Required amount: USD 35,000
- Treatment: Israel
Lia was born with several diagnoses 1) Pier Robin syndrome. 2) Arthrogryposis. 3) Varus deformation of the right foot. This meant that she (1) lacks a hard and soft palate and will have to eat through a probe until surgery is possible. 2) Multiple underdevelopment of joints. For the development of joints, daily kinetotherapy sessions are required, which are very painful. 3) A surgery on the foot.
When she was 8 months old, 2 surgeries were performed, on the neck and on the foot. Doctors rejoiced us saying that everything went well and we only need the services of a speech therapist, 2 years of Kinetotherapy and to wear special shoes, including during sleep. We were so happy. We thought the most difficult period is already over, and Lia will grow a healthy, happy child and will fully enjoy her childhood.
3.5 years have passed since the surgeries, but unfortunately the happy childhood never came. Every day her foot is more and more deformed, due to irregular walking, the muscles do not develop, it is difficult for her to walk and dance. We continue to follow various treatments, she has a very tight schedule: speech therapist, Kinetotherapy, stretching exercises for tendons, Voita therapy, pool - all these daily. Half of these procedures cause severe pain. But she does not even know what is life without pain. Despite everything, she is strong, merry and kind. Lia loves to swim and dance, she dreams about taking dance lessons, play on the rollers and go to kindergarten like all her friends. But according to doctors, it can become reality only after two more foot surgeries and 4-8 courses of intensive rehabilitation under the constant supervision of specialists. Unfortunately, during this time we spent all our resources and we really need your support. Thanks to all those who was moved by our story and supported us in these difficult moments. With Great Gratitude - Mom, Dad, Leah and fluffy sister Siu Siu.
