Name
Iosif Neghina
Age
5 years
Amount required
3,160
US Dollar
Diagnostic
X-linked adrenoleukodystrophy (X-ALD)
A message from his mother:
Greetings!
I sincerely ask everyone who has the opportunity to help our 5-year-old son Iosif, who is struggling with a very rare disease: X-linked adrenoleukodystrophy. Every day the illness progresses and his condition worsens. We kindly ask you to help us carry out examinations, analyzes and consultations abroad to see what kind of treatment is required. We sincerely hope that we can find a treatment that will at least stop the disease and prevent it from progressing.
We thank all the people who will help us and those who helped us so far in these very difficult times for our family. May God bless you and protect you!