Hello, my name is Alexandru, I am 3 years old and I was born with a rare disease, a mutation in the COL6A2 and RYR1 genes known as Ullrich's syndrome, muscular and skeletal dystrophy, respectively. Because of this disease, my muscles are very poorly developed, I cannot walk and my spine is deformed.

We could not find a solution in our country and started to look for help abroad. Doctors in Germany have assured me that treatment is possible. For the past 15 months, I have followed their advice, wearing progressive corsets that gave me promising results in terms of posture. However, the next steps are much more complicated, they require surgery and many years of treatment. Unfortunately, the financial costs associated with this treatment far exceed the capabilities of our family and friends (the minimum required amount is 96,000 euros).

I sincerely would like to play and run, next to other children, but this prospect is still unreachable. Please help me make my most precious dream come true.

I will be forever grateful to you along with everyone who loves me!