A message from her mother:
Five months ago, we had a new baby in our family, our fourth daughter. From the very beginning she was a "more quiet and calm" child, there were some movements of the lower and upper extremities and nothing predicted that everything would change in the most terrible way. It took 3 months and she could not raise her head. I went to a neurologist, who informed me that the girl had muscle hypotonia and recommended 10-12 massage sessions. Not noticing significant changes, we again turned to a neurologist and this time we were diagnosed with tetraparesis and, possibly, SMA (spinal muscular atrophy). I started to doubt that diagnosys and thought that my child cannot have one of the most terrible genetic diseases, especially since we have three healthy daughters.
On March 4th, I received the results of the genetic test, which confirmed that the child has SMA1, a disease that kills children under 2 years of age. I still cannot believe it, I cannot believe that my child needs the most expensive vaccine in the world, Zolgensma, worth $ 2,125,000 - an amount we cannot raise. We call on all people of goodwill to help us with donations, to help us raise the necessary amount to give Paula a chance to live. It is so scary to see how your child suffers and you don't the financial means to help her...
