A message from mother:

Hello, my name is Ana, and we have a child, an 8-year-old boy. For years, we have been trying to figure out what is bothering him. The initial diagnosis wasunspecified myopathy, but in order to accurately determine the correct diagnosis and treatment, we need to carry out many more complex examinations abroad. For many years we have been fighting the disease, and all the money that we have are spent for treatments and medications. Our situation is very difficult, but we will not give up. Now Iulian is attending school, and I see how much he is suffering, because many children do not want to play with him. Sometimes he feels an unbearable pain, and my soul hurts because we do not know what to do for our son to grow up as a healthy child. He is our only child, we waited for him for 10 years, our first child died, and Iulian is now the most important thing in our lifes. I have a huge request to you, I beg you to help us undergo these examinations and determine the correct treatment. I dream and live with the hope that in this hard struggle, the day will come when we will see how our boy enjoy his childhood and have a life without pain and suffering.

Thank you for your help and support!