From the Heart to Alex Rotari

12,993 EUR Of the 50,000 required
26%
1188 Donations
12 Days left
Amount required 50,000 Euro

I am writing to you in despair, not knowing who else to turn to or which door to knock on... it feels like all doors are closing in front of me. My name is Svetlana, and I am a mother of three. My baby boy is just two months old, and he is suffering from the most severe form of Spinal Muscular Atrophy (SMA1). This is a degenerative disease with autosomal recessive genetic transmission that affects the spinal cord neurons, often including those in the brain stem, leading to their death, muscle mass loss, and strength deterioration.

Alex, my little one, requires medical equipment as he cannot breathe on his own, will no longer be able to cough, and maybe, even swallow due to muscle function loss. The form of the disease he suffers from, without treatment, leads to the death of children by 18 months due to respiratory failure. Currently, we are in the hospital, connected to an oxygen machine, at the children's medical center. Thanks to God's help and the support of other mothers with special needs children, I have managed to do what others could not: to fight for his life and ultimately succeed. With the help of other mothers, we bought a bottle of EVRYSDI (RISDIPLAM) syrup to start treatment here in the country. But the cost exceeds all our means. One bottle costs more than 9000 euros. While he is small, one bottle lasts for 2 months, but as he grows, the dosage increases, and we need more. It's unbearably painful to realize that your child's life costs such amounts of money... How can I cope alone? To whom should I turn? Which door should I knock on? If I could, I would sell any part of body to save my child.

Therefore, we are forced to ask for help, to give our child a chance at life. I kneel before God and pray that kind people will come into our path to become Alex's guardian angels and help him bear the pain and suffering more easily. Help me save my son! Do not ignore our pain!

Thank you from the bottom of my heart!

Campaign began in 22 March 2024
Days left 12
Created P CaritateMD
Region Chișinău
Category Social
Bahmacenco Cristina 29 Apr, 2024 20:41 8
10 EUR
Doamne ajuta
Anonymous donation 29 Apr, 2024 19:26 9
5 USD
SMS Unite 29 Apr, 2024 15:00
45 MDL
Tel: 373*****70
Anonymous donation 29 Apr, 2024 14:56 2
5 USD
Anonymous donation 29 Apr, 2024 12:31 5
60 EUR
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All donations
10 Apr, 2024

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22 Mar, 2024

Am dat start campaniei

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